Education About Disabilities/Diagnoses

Description: Programs that offer workshops, discussion groups, activities and other types of training that sensitize participants to people with disabilities, visible differences, and mental health and mental illness. Includes information for individuals and families with these conditions, as well as information to help others experience what it is like to have a disability, and share techniques for positive communication and interaction with people who have disabilities. (Adapted from AIRS PH-6200.1850 Disability Awareness Programs )

If you know of a Service that should be listed but isn't or if you find errors in a listing, please let us know by using our Feedback form.
Disclaimer...
Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

ID

Boise, ID

Address: 310 W. Idaho St.
Boise, ID 83702
Phone: 208-344-4340
Fax: 208-343-0093
Services Provided: The Epilepsy Foundation of Idaho (EFI) leads the fight to stop seizures, find a cure and overcome the challenges created by epilepsy. The Epilepsy Foundation of Idaho serves our state as the principal advocate for the epilepsy community; over 22,000 people in Idaho are living with epilepsy or seizure-related conditions.
*This office oversees Epilepsy Foundation of Idaho in Boise, Coeur d'Alene and Idaho Falls.
*Serves children and adults with epilepsy, their families, and other interested persons through a broad range of programs including: Emergency financial assistance for purchase of anti epileptic drugs, support groups, parent and family networks, counseling, advocacy, and information and assistance. Scholarships for students with epilepsy.

Through its HOPE (Helping Other People with Epilepsy) program, The Epilepsy Foundation of Idaho provides epilepsy education for general audiences, including specific programs for the senior and Hispanic populations, their families, care givers/providers, and health professionals. To make arrangements for a presentation or for more information contact the appropriate office for your area.

Managing Students with Seizures – School Nurse Training Program
The School Nurse Training Program is a continuing education training program designed to provide the school nurse with information, strategies and resources that will enable him/her to better manage the student with seizures by:
•Supporting positive treatment outcomes
•Maximizing educational and developmental opportunities
•Ensuring a safe and supportive environment

A continuing education course (3.2 contact hours) is available online through a partnership with the National Association of School Nurses. See website for more details.
Original Source: Idaho Careline 211
Last Updated: 10/31/2018

Meridian, ID

Organization Name: Sensory Bin: Pediatric Therapy Clinic
Address: 1098 N. Hickory Ave, Ste 110
Meridian, ID 83642
Phone: 208-888-6885
Fax: 208-888-6999
Eligibility: Accepts Medicaid and most insurances
Services Provided: "Our group begins with an opening circle that includes song, movement, and a “social check-in” for readiness to interact. Our primary activities are structured, yet free-flowing to meet the current needs of the group. The therapist (Music and/or OT) bring rhythm, sequencing, emotion sharing, self-regulation, and focus into the social exchanges. Group activities may include physical movement, sensory exploration, and project oriented tasks. Every child is encouraged to participate at their comfort level with the therapist modeling to enhance opportunities to gain greater skills.

We believe in promoting the primary “occupation” of children in an environment where small groups of children with different ability levels can come together to socialize and participate with one another. Social skills are enhanced through opportunities for stimulation to the motor, sensory, language, and emotional systems of the body. We agree that promoting social opportunities provides enhanced peer relations, self-regulation, self-confidence, flexibility, and body coordination for greater assimilation into other challenging daily experiences.

Our mission is to:
•Provide structure for gaining social skills: staying on topic, flexibility, listening, and emotion sharing
•Allow each child to express themselves individually
•Strive for relationship development
•Model positive social interactions with peers
•Promote a model for self-regulation among peers
•Improve total body awareness and coordination

Our intention for parents/caregivers:
•Learn strategies for emotional sharing and regulation during peer interactions
•Gain skills to promote social interactions in busy settings
•Collaborate with other parents and caregivers in the community
•Generalize social abilities of child to community settings"
Original Source: Idaho Careline 211
Last Updated: 9/22/2014
Organization Name: Sensory Bin: Pediatric Therapy Clinic
Address: 1098 N. Hickory Ave, Ste 110
Meridian, ID 83642
Phone: 208-888-6885
Fax: 208-888-6999
Eligibility: Accepts Medicaid and most insurances
Services Provided: "Our Group Philosophy:

We believe in promoting the primary “occupation” of children in an environment where small groups of children with different ability levels can come together to play and participate with one another. Play skills are enhanced through opportunities for stimulation to the motor, sensory, language, and emotional systems of the body. We agree that promoting play opportunities provides enhanced peer relations, self-regulation, and body coordination for greater assimilation into other challenging play and social experiences.

Our mission is to:
•Provide a variety of sensory-motor based play experiences
•Enhance a sense of “ME” in the picture
•Model positive social interactions with peers
•Promote a model for self-regulation
•Improve total body awareness and coordination for play

Our intention for parents/caregivers:
•Learn strategies for emotional regulation during peer interactions
•Increase knowledge for age related play skills
•Collaborate with other parents and caregivers in the community
•Generalize play and social abilities of child to other settings

Our group begins with an opening circle that includes song, movement, and a “body check-in” for activity levels. Our primary activities are structured and include sensory based play. This includes tactile messy play, heavy work activities, obstacle courses, and cooperative movement activities. Every child is encouraged to participate at their comfort level with therapist modeling to enhance opportunities to gain greater skills."
Original Source: Idaho Careline 211
Last Updated: 9/22/2014

Nationwide

555 E. Wells Street, Ste 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Address: 555 E. Wells Street, Ste 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Fax: 414-276-2146
Services Provided: A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.
Original Source: MedHome Portal
Last Updated: 3/22/2018
141 NW Point Blvd
Elk Grove Village, IL 60007
Phone: 847-434-4779
Address: 141 NW Point Blvd
Elk Grove Village, IL 60007
Phone: 847-434-4779
Eligibility: None
Services Provided: *** Online Resource *** The site was developed by the Pediatrics Collaborative Care (PedsCare)
The AAP Oral Health Initiative offers a monthly electronic publication that shares information, updates, and notifications of events related to oral health. In addition, information about funding opportunities, conferences, announcements, and resources are included.
Original Source: Idaho Careline 211
Last Updated: 11/2/2018
Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Organization Name: University of Kansas
Address: Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Fax: 785-864-7605
Services Provided: The Beach Center on Disability is a multidisciplinary research and training center committed to making a significant and sustainable positive difference in the quality of life of individuals and families affected by disability and the professionals who support them. Internationally-recognized leaders in research on and interventions to promote the self-determination of children, youth, and adults with (and without) disabilities.
Provider Profiles: Based at the University of Kansas.
Original Source: MedHome Portal
Last Updated: 1/10/2019
1600 Clifton Rd
Atlanta, GA 30333
Phone: 888-246-2675
Address: 1600 Clifton Rd
Atlanta, GA 30333
Phone: 888-246-2675
Eligibility: None.
Services Provided: National AIDS Hotline: 1-800-342-2437 (English); 1-800-344-7432 (Spanish).


The Centers for Disease Control and Prevention (CDC) is recognized as the lead federal agency for protecting the health and safety of people - at home and abroad, providing credible information to enhance health decisions, and promoting health through strong partnerships. CDC serves as the national focus for developing and applying disease prevention and control, environmental health, and health promotion and education activities designed to improve the health of the people of the United States.

Members of the general public can call regarding communicable diseases or access the website for information.
Original Source: Idaho Careline 211
Last Updated: 3/15/2019
730 N Franklin St, Suite 501
Chicago, IL 60654-7225
Phone: 800-826-3632
Address: 730 N Franklin St, Suite 501
Chicago, IL 60654-7225
Phone: 800-826-3632
Eligibility: Contact for specific information.
Services Provided: Educates patients, professionals, and the public concerning the nature of depressive, bipolar disorder (also known as manic depression) or mood disorder. Maintains over 1000 support groups around the country.
Provider Profiles: National
Original Source: MedHome Portal
Last Updated: 12/18/2017
8301 Professional Place East Ste 200
Hyattsville, MD 20785-2353
Phone: 301-459-3700
Address: 8301 Professional Place East Ste 200
Hyattsville, MD 20785-2353
Phone: 301-459-3700
Toll Free Phone: 800-332-1000
Fax: 301-577-2684
Email: ContactUs@efa.org
Languages Spoken: Spanish
Eligibility: Individuals with epilepsy, their families and friends.
Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.
Provider Profiles: Spanish Speakers Phone number: 866-748-8008
Original Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2019
CB 8180
Chapel Hill, NC 27599-8180
Phone: 919-966-2622
Organization Name: University of North Carolina at Chapel Hill
Address: CB 8180
Chapel Hill, NC 27599-8180
Phone: 919-966-2622
Services Provided: Enhances the lives of children and families through interdisciplinary research, technical assistance, professional development, and implementation science. FPG is one of the nation's oldest and largest multidisciplinary centers devoted to the study of young children and their families. About 275 researchers, implementation and technical assistance specialists, staff, and students work on more than 75 projects related to developmental disabilities; early care and education; physical and social health; professional development, technical assistance, and implementation science; public policy and evaluation; and racial, ethnic, linguistic, cultural, and socioeconomic diversity.
Original Source: MedHome Portal
Last Updated: 1/10/2019
1005 Boylston St
Newton, MA 02461
Phone: 800-323-1305
Address: 1005 Boylston St
Newton, MA 02461
Phone: 800-323-1305
Eligibility: Check website for details.
Services Provided: Online Resource: Information about Head Lice, including treatment and prevention.
Original Source: Idaho Careline 211
Last Updated: 3/15/2019
Address: 110 West Road
Towson, MD 21204
Phone: 800-296-4433
Email: frontdesk@primaryimmune.org
Eligibility: Individuals with primary immunodeficiency diseases and their families
Services Provided: A national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through advocacy, education, and research. Learn about primary immunodeficiencies, it's diagnosis, treatment; and living with PI, at different ages, getting support, finding a physician, insurance, school, etc. IDF Physician Finder to locate a physicial by location, last name, specialty and more.
Original Source: MHP-Nationwide
Last Updated: 4/10/2019
24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-328-8080
Organization Name: Bateman Horne Center of Excellance
Address: 24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-328-8080
Fax: 1-866-555-1122
Email: support@batemanhornecenter.org
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: Leading the way in the medical advancement and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Formerly the Fatigue Consultation Clinic (FCC) and the Organization for Fatigue & Fibromyalgia Education & Research (OFFER), BHC been committed to the education of medical providers for more than 25 years.
Provider Profiles: Lucinda Bateman M.D.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
9609 Medical Center Drive
Bethesda, MD 20892-9760
Phone: 800-422-6237
Address: 9609 Medical Center Drive
Bethesda, MD 20892-9760
Phone: 800-422-6237
Fax: (719) 776-3132
Email: cancergovstaff@mail.nih.gov
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: A free public service of the National Cancer Institute providing the latest most accurate cancer information for patients, their families, the general public, and health professionals in a personalized confidential manner.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
Address: 31 Center Dr., MSC 2320
Bethesda, MD 20892
Phone: 800-241-1044
TDD: 800-241-1055
Eligibility: communication disorders
Services Provided: Information specialists provide callers with fact sheets, resources and referrals to other organizations and agencies. Topics include hearing, balance, smell and taste, voice, speech, and language disorders.
Original Source: MedHome Portal
Last Updated: 3/22/2018
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-891-5390
Address: 3 Information Way
Bethesda, MD 20892-3580
Phone: 800-891-5390
Fax: 703-738-4929
Eligibility: Contact for specific information.
Services Provided: The NKUDIC is an information and referral service of the National Institute of Diabetes and Digestive and Kidney Diseases. NKUDIC responds to written inquiries, develops and distributes publications and provides referrals to kidney and urologic organizations.
Original Source: Idaho Careline 211
Last Updated: 1/31/2019
Address: 30 E 33RD St
New York, NY 10016
Phone: 800-622-9010
Eligibility: Contact for specific information.
Services Provided: Provides public awareness of local research donor for kidney and urinary tract infections. Mostly educational information on nutrition, kidney donation and treatment.
Some financial assistance available through local chapters.
Original Source: Idaho Careline 211
Last Updated: 11/2/2018
Address: 55 Kenosia Avenue
Danbury, CT 06810
Phone: 203-744-0100
Toll Free Phone: 800-634-7207
Fax: 203-263-9938
Eligibility: Persons with a rare disease.
Services Provided: NORD is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Co-pay Assistance Program.
Patient Assistance Program, RareCare: helps patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.
Original Source: MedHome Portal
Last Updated: 6/3/2019
200 Independence Ave SW
Washington, DC 20201
Phone: 800-368-1019
Address: 200 Independence Ave SW
Washington, DC 20201
Phone: 800-368-1019
TDD: 800-537-7697
Services Provided: The new privacy regulations ensure a national floor of privacy protections for patients by limiting the ways that health plans, pharmacies, hospitals and other covered entities can use patients' personal medical information. The regulations protect medical records and other individually identifiable health information, whether it is on paper, in computers or communicated orally. The web site includes Frequently Asked Questions (FAQs) and Privacy Guidance. It includes the list of all If you don't find the information you were seeking, you may submit an e-mail by clicking on the mailbox. Program is administered by the U.S. Department of Health and Human Services.
Original Source: Idaho Careline 211
Last Updated: 3/15/2019
1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Address: 1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Toll Free Phone: 877-573-9971
Fax: 310-725-0029
Email: info@pancan.org
Eligibility: Anyone
Services Provided: The Pancreatic Cancer Action Network is a nationwide network of people dedicated to working together to advance research, support patients and create hope for those affected by pancreatic cancer.
Pancreatic Cancer Action Network is the national organization creating hope in a comprehensive way through research, patient support, community outreach and advocacy for a cure. The organization raises money for direct private funding of research and advocates for more aggressive federal research funding of medical breakthroughs in prevention, diagnosis and treatment of pancreatic cancer.
The Pancreatic Cancer Action Network fills the void of information and options by giving patients and caregivers reliable, personalized information they need to make informed decisions. The organization helps support individuals and communities all across the country work together to raise awareness and funds to find a cure for pancreatic cancer. We create a sense of hope and community so no one has to face pancreatic cancer alone.
Original Source: Idaho Careline 211
Last Updated: 11/2/2018
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
Phone: 201-250-8440
Address: 401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
Phone: 201-250-8440
Toll Free Phone: 800-714-5437
Fax: 201-250-8435
Email: info@parentprojectmd.org
Services Provided: Information about Duchenne Muscular Dystrophy for families, including responding to a new diagnosis, finding care, and genetic testing. PPMD’s Decode Duchenne genetic testing program provides free genetic testing and counseling to people in the Duchenne or Becker muscular dystrophy community who otherwise could not afford genetic testing.

Runs Certified Duchenne Care Center Program, which supports standardized comprehensive care for people with Duchenne. Also promotes research and organizes advocacy initiatives.
Original Source: MHP-Nationwide
Last Updated: 5/9/2019
Address: PO Box 5930
Midlothian, VA 23112
Phone: 800-366-7741
Toll Free Phone: 888-700-7010
Fax: 804-744-9388
Email: psiops@uneedpsi.org
Eligibility: Financial assistance for insured and uninsured patients with chronic illnesses. Assistance is focused on a limited number of around 20 diseases, and the list always changes.
Services Provided: Provides online disease and treatment information as well as limited financial assistance for patients with chronic illnesses who are struggling to keep up with expensive premiums and copayments. Available programs and specific illnesses are regularly updated. Financial assistance includes: subsidizing the cost of health insurance premiums; providing pharmacy and treatment copayment assistance; assisting with Medicare Part D co-insurance; providing travel assistance for transportation reimbursement.
Provider Profiles: Online resources
Original Source: MHP-Nationwide
Last Updated: 5/9/2019
25 Taylor Street 7th Floor
San Francisco, CA 94103
Phone: 877-435-7443
Address: 25 Taylor Street 7th Floor
San Francisco, CA 94103
Phone: 877-435-7443
Toll Free Phone: 800 822 7422
Fax: 415-558-0684
Eligibility: People with HIV/AIDS and Hepatitis C
Services Provided: Online Resource & Infoline: Project Inform provides free of charge complete and up-to-date HIV/AIDS treatment information to individuals living with HIV/AIDS, their caregivers and their healthcare and service providers across the country, including the treatment journal PI Perspectives, which focuses on the latest information regarding ongoing HIV/AIDS research, effective treatment strategies and advances on the horizon. National HIV Treatment hotline. Referrals.
Provider Profiles: HIV Health Infoline 10 am - 4 pm M - F PST
Hepatitis C Helpline M - F 9 am - 7 pm EST 1-877-435-7443
Original Source: Nationwide Suggest Providers Queue
Last Updated: 4/29/2019
40 York Rd
4th Floor
Baltimore, MD 21204
Phone: 410-296-0232
Address: 40 York Rd
4th Floor
Baltimore, MD 21204
Phone: 410-296-0232
Eligibility: Contact for specific information.
Services Provided: Online Information for Dyslexia Sufferers. The International Dyslexia Association (IDA) is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them. The website has a link to e-mail the association in order to find the providers in the area.
Original Source: Idaho Careline 211
Last Updated: 11/2/2018
Address: 42-40 Bell Blvd Suite 205
Bayside, NY 11361
Phone: 718-224-2999
Toll Free Phone: 888-486-8738
Fax: 718-279-9596
Email: support@tourette.org
Services Provided: A national organization serving children, individuals and families affected by Tourette Syndrome (TS.) Comprehensive online information includes six online CME/CNE programs, programs on Recognition, Diagnosis & Treatment, and training for Allied Professionals and Educators. The website also contains resources for patients and families.
Original Source: MedHome Portal
Last Updated: 8/22/2018

MD

Bethesda, MD

31 Center Dr
MSC 2510
Bethesda, MD 20892
Phone: 301-496-5248
Address: 31 Center Dr
MSC 2510
Bethesda, MD 20892
Phone: 301-496-5248
Services Provided: National Eye Institute is the principal agency for conducting and supporting vision research aimed at improving the prevention, diagnosis, treatment and rehabilitation of diseases that affect the eye and vision
Original Source: Idaho Careline 211
Last Updated: 10/30/2018