Angelman Syndrome
- Introduction
- What is Angelman syndrome and what causes it?
- What are the symptoms of Angelman syndrome?
- How is it diagnosed?
- What is the prognosis?
- What is the risk for other family members or future babies?
- What treatments/therapies/medications are recommended or available?
- How will my child and our family be impacted?
- My child's teacher says that my child is having seizures at school but her neurologist is unimpressed and does not yet want to start medication. Why?
- We don't have insurance and our child needs a second, very expensive medication for his seizures. What can we do?
Introduction
What is Angelman syndrome and what causes it?
What are the symptoms of Angelman syndrome?
How is it diagnosed?
What is the prognosis?
What is the risk for other family members or future babies?
What treatments/therapies/medications are recommended or available?
How will my child and our family be impacted?
My child's teacher says that my child is having seizures at school but her neurologist is unimpressed and does not yet want to start medication. Why?
We don't have insurance and our child needs a second, very expensive medication for his seizures. What can we do?
Resources
Information & Support
For Parents and Patients
Support
Support Resources (Angelman Syndrome Foundation)
Educational and community resources for those caring for children with Angelman syndrome.
Epilepsy Foundation
A national organization that provides information about epilepsy; programs to improve epilepsy treatment; materials to assist
in helping people with epilepsy find jobs; activities in schools to educate the public; activities to educate policymakers;
funds for research; links to find local and state resources; and news about conferences and other items of interest.
General
Angelman Syndrome Foundation
Information, resources, and discussion forums for individuals with AS and their families. This organization also raises money
for research on AS.
Foundation for Angelman Syndrome Therapeutics (FAST)
Established in 2008, FAST aims to assist individuals living with Angelman syndrome to realize their full potential and quality
of life and to bring practical treatment into current medical practice as quickly as possible. The website offers educational
material, ways to connect with the founder (a parent of a child with Angelman syndrome) and with other parents, and other
resources.
Angelman Syndrome (Genetics Home Reference)
Excellent, detailed review of condition for patients and families; U.S. National Library of Medicine.
Prescription Assistance Programs (American Epilepsy Society)
Information and links to various prescription assistance programs, which may help reduce the cost of medications significantly.
Angelman Syndrome (Orphanet)
Information and links about AS.
Angelman Syndrome (Mayo Clinic)
Information about symptoms, causes, risk factors, complications, tests, treatment, and coping strategies.
American Epilepsy Society
Information and resources to understand epilepsy, especially for those who are not familiar with the condition.
Services in Idaho
Developmental - Behavioral Pediatrics
See all Developmental - Behavioral Pediatrics services providers (2) in our database.
Early Childhood Education/Preschool
See all Early Childhood Education/Preschool services providers (14) in our database.
Early Intervention for Children with Disabilities/Delays
See all Early Intervention for Children with Disabilities/Delays services providers (150) in our database.
Occupational Therapy, Pediatric
See all Occupational Therapy, Pediatric services providers (23) in our database.
Pediatric Gastroenterology
See all Pediatric Gastroenterology services providers (2) in our database.
Psychologist, Child-18 (PhD, PsyD)
See all Psychologist, Child-18 (PhD, PsyD) services providers (7) in our database.
Speech - Language Pathologists
See all Speech - Language Pathologists services providers (68) in our database.
For other services related to this condition, browse our Services categories or search our database.