Tools & Checklists
On this Page
Check Your Readiness
-
Got Transition® - Youth & Young Adults - Health Care Transition Quiz
Quiz to help youth and young adults transition to adult health care by assessing knowledge and ability to self-advocate. Provides additional resources and tools to help with the transition. -
Got Transition® - Parents & Caregivers - Health Care Transition Quiz
Quiz to help parents and caregivers assess if their child is ready to transition from a pediatrician to an adult doctor. Provides additional tools and resources to help parents and caregivers plan for the transition to adult health care and how to assist their child. -
Sample Transition Readiness Assessment for Parents/Caregivers (
211 KB)
From Got Transition's Six Core Elements of Health Care Transition 3.0, this form helps parents and caregivers assess their child's knowledge of health and health care, medicines, and any skills the child needs to work on. This assessment helps parents and doctors improve the child's health care skills. -
Ejemplo de evaluación de la preparación para la transición para padres/cuidadores ( 298 KB)
De los Seis Elementos Básicos de la Transición de la Atención Médica 3.0 de Got Transition, este formulario ayuda a los padres y cuidadores a evaluar el conocimiento de su hijo sobre la salud y la atención médica, los medicamentos y las habilidades en las que el niño necesita trabajar. Esta evaluación ayuda a los padres y a los médicos a mejorar las habilidades de atención médica del niño. -
Utah Division of Service for People with Disabilities (DSPD)
DSPD is part of the Utah Department of Human Services and provides programs and services for people with disabilities. It is important for all families of children with special needs to be aware of this service and to apply if their child is eligible. There is a waiting list.
Toolkits, Charts & Forms
-
A Family Toolkit: Pediatric-to-Adult Health Care Transition (gottransition.org) ( 2.2 MB)
Toolkit developed to help families during pediatric-to-adult health care transition, and includes resources for both parents/caregivers and youth/young adults. These tools can be used to better prepare youth and families for the transition to adult care. -
Preparing for the Transition from Pediatric to Adult Health Care: Parent Guide ( 285 KB)
Got Transition guide for parents to plan for the transition to adult care for their children, and advises start as early as 12 to involve the pediatrician in the process and gradually move to an adult doctor between ages 14 and 18. It also lists questions that parent's can ask doctors if their child has special needs. -
Planning to Move from Pediatric to Adult Care? ( 256 KB)
Got Transition comparison chart of Pediatric and Adult Care. It describes changes in the health care setting and lists tips for the move to adult health care. -
Medical ID - Smartphones ( 1.9 MB)
Medical ID is a standard Medical ID that could be used for teens and young adults to take an active role in their health care. It is available for Apple or Android phone and keeps records of medications, doctors and emergency contacts. While this is not a complete record, it is a good basic summary with links to medical records. It is designed for the cell phone owner. - Care Notebook
Guardianship & Supported Decision-Making
-
Guardianship Fact Sheet ( 227 KB)
Disability Law Center fact sheet that defines guardianship, different types of guardianship, who an be a guardian, and deciding if a guardian is needed. It provides details about what a guardian can do, the process of creating a guardianship, and the patient's rights under a guardianship. -
Alternatives to Guardianship Fact Sheet ( 208 KB)
Disability Law Center sheet that discusses options for help with decision making without a guardian. These decisions include medical, financial, education, and housing along with additional resources to discuss other assistance and when it may be needed. -
Supported Decision-Making Resource Library (ACLU)
American Civil Liberties Union (ACLU) page that provides links to general information about supported decision-making, including guardianship laws by state and programs to implement the support. The page includes a video library, tools for implementing supported decision-making, and legal information.
Finding Adult Providers
-
Got Transition Radio Episode 4 Preparing for a Dr's Visit!
YouTube recording of Got Transition Radio's episode focusing on the preparation for a visit to the doctor for youth transitioning to adult care. Hosts Eileen Forlenza and Mallory Cyr discuss strategies and steps that can be taken ahead of time to make the most of the visit, and how to begin important transition dialogue and skill building for youth. -
Finding Adult Providers (Illinois Healthcare Transition Project) ( 384 KB)
Information from Illinois Healthcare Transition Project/AAP with helpful information about how to find adult providers, and what questions to ask a new doctor and staff to decide on the new provider. This includes encouraging young adults to find the new doctor while still being seen by the current one, and questions to make sure the new provider will meet all needs. -
For Youth and Young Adults: Questions to Ask Your Doctor About Transitioning to Adult Health Care ( 114 KB)
Got Transition and Family Voices guide to help youth and young adults transition to adult health care. The list includes questions for the adolescent years, before making the first appointment with a new adult doctor, and to prepare for the first visit with the new doctor. -
Turning 18: What it Means for Your Health ( 122 KB)
Got Transition document that discusses legal differences regarding medical information and communication with doctors when a patient turns 18. Provides information about HIPAA, sharing medical information and decisions, and resources for supporting managing health decisions.
Health Insurance and SSI
-
#HealthyAdulting 101: How Does My Health Insurance Work? ( 263 KB)
A Young Invincibles Initiative document that defines health insurance, why it is needed, what's covered, and how it works. Provides details on options for health insurance, how a young adult may get coverage and ways to compare options and what to look for in a health plan. -
Health Insurance Basics (for Teens) - Nemours Kidshealth
Page defines health insurance, why it's important, and how to get it. It provides details about pre-existing conditions, the different types of insurance and information about health insurance terms that may be used. -
Health Care Coverage Options for Young Adults
HealthCare.gov page for people under 30 and getting insurance coverage. It lists the options of staying or getting on a parent's plan, individual's own plan, student health plans, and Medicaid and CHIP. -
Apply for Medicaid - Utah Department of Health Medicaid
Instructions and online application for Medical Benefits in Utah. This includes different medical-only, long-term care addendum, and multi-program applications-all forms in English and Spanish. - Supplemental Security Income (ssa.gov) Home Page
-
Use SSI to Get Ready for Your Future ( 33 KB)
This handout provides brief tips for young adults as they consider how work will impact their SSI and Medicaid Benefits; from the Kentucky Commission for Children with Special Health Care Needs.
Authors
| Compiler: | Information compiled by Medical Home Portal authors and staff |
| Content Last Updated: | 10/2021 |
Funding:
Thank you to the Utah Medical Home Young Adult Advisory Committee for reviewing this section.